The HIT platform supports consensual sharing of health information between organizations looking for health-related data and individuals who can provide the data. Due to blockchain technology it is decentralized and autonomous, i.e. not controlled and maintained by an organization but GDPR compliant.
The #1 reason why medical research projects fail are problems in the recruitment of participants. A decentralized patient registry allows researchers to broadcast who they are looking for without the burden to maintain a databank with profile data of participants.
It is the individuals who control the access to their data. In the world of data protection laws researcher have to be able to get real-time consent. This can be achieved by mapping the HI-Trust wallet ID with any record ID.
Compensating research participants for the effort they undertake to provide data offline or online increases their response rate. With blockchain technology and digital asset transfer this is super easy and transparent.