HIT for Rare Diseases
Matching patients and treatment providers globally
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Decentralized Patient Registry

Facilitates access of researchers and treatment providers to patients with rare diseases and their families. At the same time giving them access to clinical trials, treatment options, and peer-to-peer community connections at the same time.

Benefit for patients

Patients can be contacted for research or treatment purposes globally, while a decentralized patient registry protects their privacy. It gives them control with whom they share data and for which purpose. On the HIT Platform compensation is easy and transparent.

Patient organisations

Play a vital role in decentralized registries and can be freed from the obligation of storing patient data in a safe and GDPR compliant way. Patients can be contacted and found more easily.

Researcher

Can reach people living with rare diseases at a global scale. With the HI-Trust app data collection can happen in real-time and patients can be contacted for consent to use existing data directly.

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GDPR Compliant

No personal health data is stored on the HIT platform

Blockchain Verified

Transactions and agreements are transparent and immutable

Data Access

You decide what data you want to share and with whom

Patient Recruitment

Tailored broadcasting what data you are looking for

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