Facilitates access of researchers and treatment providers to patients with rare diseases and their families. At the same time giving them access to clinical trials, treatment options, and peer-to-peer community connections at the same time.
Patients can be contacted for research or treatment purposes globally, while a decentralized patient registry protects their privacy. It gives them control with whom they share data and for which purpose. On the HIT Platform compensation is easy and transparent.
Play a vital role in decentralized registries and can be freed from the obligation of storing patient data in a safe and GDPR compliant way. Patients can be contacted and found more easily.
Can reach people living with rare diseases at a global scale. With the HI-Trust app data collection can happen in real-time and patients can be contacted for consent to use existing data directly.